Trisomy 13: Challenging the Narrative and Choosing Hope

Trisomy 13: Challenging the Narrative and Cho...

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Tay-Sachs Disease: A Father's Story of Diagnosis, Parenting, and Purpose

In this episode of Inside the Children's Hospital, Katie Taylor sits down with Dr. Matt Goldstein—physician, biotech leader, and father—who shares the story of his daughter, Havi, and her diagnosis with Tay-Sachs disease. Despite both parents undergoing genetic screening before s ...  Show more

Why Hospital Continuity and Staff Support Are Critical: Parents Speak Out

Supporting Families in Pediatric Healthcare: Insights from Parent Caregivers In this episode, we explore the experiences of parent caregivers navigating their child's complex health journeys, emphasizing the importance of advocacy, sharing stories, and hospital-family collaborati ...  Show more

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