KS95 for Kids

On May 27, 2019, Trevor came to his mother, Josie, hand on his forehead, with a severe headache and said, “Mom, something is wrong. I need to go to the hospital.” MRIs showed that Trevor had a category 4 AVM (arteriovenous malformation), a tangled mass of blood vessels on the lef ...  عرض المزيد

Wes spent his first three days on a ventilator. It was determined that Wes had suffered a grade 1 (the least severe type) intraventricular hemorrhage (IVH), better known as bleeding in the brain, but his providers were hopeful it would not lead to further complications. “Wes was ...  عرض المزيد

“Sam was born 5 weeks premature,” his mother, Barbara recounts. “The impact this would have on his future development was completely unclear. We were told that we just had to ‘wait and see’.” Sam progressed typically during his infancy, but at 5 months as his right hand became mo ...  عرض المزيد

Owen had a condition called aqueductal stenosis, which means that the third and fourth ventricles of his brain did not develop properly, causing his brain to fill with spinal fluid to the point where it appeared he had virtually no brain tissue. There was no way for the spinal fl ...  عرض المزيد

MaKiah was born premature at 29 weeks. When she was 15 months old, her parents were told that she had cerebral palsy. When she had her first seizure at 18 months, she was diagnosed with epilepsy. Now 14, she’s been hospitalized as an inpatient (both planned and entirely unplanned ...  عرض المزيد